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Home / Resources / Support and Advocacy

Support and Advocacy

If you have questions or need support, your healthcare provider team can help make connections to physical or emotional support resources.

Additionally, there are organizations and support groups dedicated to helping people with MHE, researchers, and their communities.

MHE Coalition

MHE Research Foundation

Facebook - MHE friends and family

Facebook - The New MHE & HME & MO Support Group

Facebook - HME The New Generation (UK/EU)

Facebook - Multiple Hereditary Exostoses Osteochondroma Support Group

US Pain Foundation

National Organization for Rare Disorders (NORD)

Support and Advocacy

MHE Coalition

MHE Research Foundation

Facebook - MHE friends and family​

Facebook - The New MHE & HME & MO Support Group​

Facebook - HME The New Generation (UK/EU)​

Facebook - Multiple Hereditary Exostoses Osteochondroma Support Group​

US Pain Foundation​

National Organization for Rare Disorders (NORD)​

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Join the MHELS Community

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The MHE Learning System (MHELS) is committed to improving the lives of people with MHE through collaboration and shared learning. 

The MHE Learning System is a registered 501(c)(3) nonprofit organization.

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